CARING EXPERIENCES OF NURSES AND ELDERLY HEMODIALYSIS PATIENTS : BASIS FOR MODULAR DEVELOPMENT ON PATIENT’S CARE AND EDUCATION
Abstrak
This phenomenological research study unveiled the meaning of caring experience between the nurse and elderly patient in the hemodialysis treatment setting using Schoenhofer's research-as-praxis methodological process. Using this method, the researchers conducted a dialogue that involved the presence of both participants at the same time to explore on: (1) the experiences of both nurse and elderly hemodialysis patients while undergoing hemodialysis treatment; and (2) how the concerns of elderly HD patients being addressed. Data from the twelve (12) participants were analyzed using QDA Miner Lite, and thematic three-phase analysis was done. The experiences of elderly HD patients were thematically described as care in reminders and restrictions, center as community of support, importance of family care and support, and multifaceted approach to dialysis treatment. Likewise, the experiences of nurses were described as they care for their HD patients, such as heart as the core of care, exhausted but fulfilled, and patience in communicating with patients and relatives. From the explored experiences of both nurse- and patient-participants, four (4) themes were created that answered the concerns of elderly HD patients and these include: resistance and forgetfulness require collaborative and consistent support, financial cost of dialysis is a challenge, patients find comfort in the center’s community to combat fear and loneliness, and living up to patient’s confidence is a continuous challenge. Though findings revealed that elderly HD patients require constant reminder in restricting fluid and dietary intake, they still find nurse’s behavior as a genuine manifestation of care and discipline. Nurses, on the other hand, are aware that elderly HD patients are becoming resistant and forgetful, thus, they require more attention and special care. It can be concluded that the caring relationship that is built between the nurse- and patient-participants is comparable to that of a family.
Referensi
[2] G. Soriano, "Depression and quality of life among chronic kidney disease patients on hemodialysis at selected stand-alone renal facilities in Manila: A cross-sectional study," Asian Journal of Nursing Education and Research, Apr. 2019. http://dx.doi.org/10.5958/2349-2996.2019.00053.3
[3] C. Camedda, G. Bici, C. E. Magi, A. Guzzon, and Y. Longobucco, "The therapeutic nurse–patient relationship in hemodialysis: a pilot mixed-method study on the perceived quality of nurses’ attitudes and caring behaviors," Nursing Reports, vol. 13, no. 3, pp. 990-1003, 2023. https://doi.org/10.3390/nursrep13030087
[4] W. Hwang, J. H. Lee, J. Nam, J. Oh, I. Park, and M. S. Cho, "Self-care through dynamic appetite alteration: a grounded theory study of patient experience on maintenance hemodialysis," Clinical Nutrition Research, vol. 11, no. 4, p. 264, 2022. https://doi.org/10.7762/cnr.2022.11.4.264
[5] L. T. C. Pereira and M. M. de Menezes Ferreira, "Percepções de pacientes com doença renal crônica sobre tratamento de hemodiálise e assistência de enfermagem," Journal of Nursing and Health, vol. 12, no. 2, 2022. http://dx.doi.org/10.15210/jonah.v12i2.4424
[6] M. F. Malo, A. Affdal, D. Blum, F. Ballesteros, W. Beaubien-Souligny, M. L. Caron, and R. S. Suri, "Lived experiences of patients receiving hemodialysis during the COVID-19 pandemic: a qualitative study from the Quebec renal network," Kidney360, vol. 3, no. 6, pp. 1057-1064, 2022. https://journals.lww.com/kidney360/fulltext/2022/06000/lived_experiences_of_patients_receiving.14.aspx
[7] M. M. Leko and T. Handy, "Literacy instruction for adolescents with learning disabilities: examining teacher practice and preparation," Learning Disabilities: A Contemporary Journal, vol. 17, no. 1, pp. 117-138, 2019. https://files.eric.ed.gov/fulltext/EJ1218036.pdf
[8] P. J. Stone, "Thematic text analysis: new agendas for analyzing text content," in Text Analysis for the Social Sciences, pp. 35-54, 2020.
[9] H. Beerappa and R. Chandrababu, "Adherence to dietary and fluid restrictions among patients undergoing hemodialysis: an observational study," Clinical Epidemiology and Global Health, vol. 7, no. 1, pp. 127-130, 2019. https://cegh.net/article/S2213-3984(18)30108-8/fulltext
[10] N. Shangholian and H. Yousefi, "The lived experiences of patients undergoing hemodialysis with the concept of care: a phenomenological study," BMC Nephrology, Nov. 26, 2018. https://doi.org/10.1186/s12882-018-1138-4
[11] Aini, N. & Wahyu A.C. (2020). The Correlation between family support and psychological well-being in patients with end-stage renal disease. KONTAKT: Journal of nursing and social sciences related to health and illness https://kont.zsf.jcu.cz/pdfs/knt/2020/04/13.pdf
[12] N. Tavassoli, A. Darvishpour, R. Mansour-Ghanaei, and Z. Atrkarroushan, "A correlational study of hope and its relationship with spiritual health on hemodialysis patients," Journal of Education and Health Promotion, vol. 8, no. 1, p. 146, 2019. DOI: 10.4103/jehp.jehp_461_18
[13] Y. N. Lee and E. Y. Kim, "Experiences of nurses caring for hemodialysis patients: a qualitative meta-synthesis study," Korean Journal of Adult Nursing, vol. 34, no. 2, pp. 168-177, 2022. https://kjan.or.kr/pdf/10.7475/kjan.2022.34.2.168
[14] A. S. Almeida, A. Paguia, and A. P. Neves, "Nursing interventions to empower family caregivers to manage the risk of falling in older adults: A scoping review," International Journal of Environmental Research and Public Health, vol. 21, no. 3, p. 246, 2024. https://doi.org/10.3390/ijerph21030246
[15] K. Almonte and D. E. Weiner, "COVID-19 universal testing in hemodialysis facilities to reduce infection risk," Kidney Medicine, vol. 2, no. 6, pp. 681-683, 2020. https://doi.org/10.1016/j.xkme.2020.11.004
[16] P. Jandrić, A. F. Martinez, C. Reitz, L. Jackson, D. Grauslund, D. Hayes, and S. Hayes, "Teaching in the age of COVID-19—The new normal," Postdigital Science and Education, vol. 4, no. 3, pp. 877-1015, 2022. https://link.springer.com/article/10.1007/s42438-022-00332-1